Cancer
by Madeleine Deye | Aug 2, 2021 | Commentary, Perspectives
Seriously ill children, adolescents, and young adults (C-AYA) live with a heavy symptom burden, uncertain or poor prognoses, and evolving expectations of their disease course that require health care professionals (HCPs) to facilitate and maintain meaningful...
by Jenna Ogilvie | Dec 17, 2018 | Discussion Paper, Perspectives
Introduction Breast cancer is the most common malignancy among women in the United States, with over 260,000 new cases and over 40,000 deaths estimated to occur in 2018 [1]. Although most breast cancers are diagnosed with disease localized to the breast or...
by Jenna Ogilvie | Oct 29, 2018 | Discussion Paper, Perspectives
During and after treatment, cancer patients and survivors suffer from a range of symptoms and side effects, chief among them fatigue and declines in physical functioning. In addition, cancer and its treatment accelerate the aging process, potentially increasing...
by Jenna Ogilvie | Oct 22, 2018 | Commentary, Perspectives
Controlling or reducing the risk for cancer was a principal goal of the National Cancer Act, signed by President Nixon in 1971. Long before the human genome was sequenced, and the etiology of many cancers was understood, Americans were determined to find a way...
by Jenna Ogilvie | Oct 8, 2018 | Commentary, Perspectives
On three separate occasions, I have heard the words, “You have cancer.” Each of these moments came at a very different point in my life. Each affected me differently. Now, with 25 years’ experience as a patient, a survivor, and an advocate, I want to reflect on...
by Jenna Ogilvie | Jul 1, 2016 | Commentary, Perspectives
Now in its third year of data disclosure, the Physician Payments Sunshine Act has helped demystify financial connections between two critically linked health sector stakeholders: health care providers and pharmaceutical companies. This week, the 2015 figures...
by Jenna Ogilvie | Feb 19, 2015 | Discussion Paper, Perspectives
The types of evidence needed to support the use of genome sequencing in the clinic varies by stakeholder and circumstance. In this IOM series, seven individually authored commentaries explore this important issue, discussing the challenges involved in and...
by Laura DeStefano | Oct 5, 2012 | Commentary, Perspectives
My story of innovation begins in 1981, when, as a young surgical trainee in Boston, I was shocked to learn that my dreams of joining the pioneers in the exciting new field of heart transplantation had been abruptly shattered—by a policy decision. The trustees of the...
by Laura DeStefano | May 11, 2012 | Discussion Paper, Perspectives
Statement of Purpose Rapid, seamless data exchange in cancer—throughout the continuum from research to clinical care—remains an unmet need with no clear path forward to a solution. We assert that there is a national urgency to find solutions to support and sustain the...
