Developing a Nationwide Coordinated System of Shared Health Data with Insight from COVID-19

Webinar Date and Time:  April 22, 2021 | 9:30 am – 12:30 pm ET

Where: Via webinar

In this webinar, the National Academy of Medicine (NAM) explored the role that a nationwide health data governance framework can have in accelerating evidence generation and mobilization for a continuously learning health system.

The conversation addressed four key components to building a successful framework:

1. Determining the conditions needed to share and aggregate health data in the public health domain to support a learning health system,
2. understanding and addressing the levels of barriers impeding the efforts of various stakeholders to develop seamless data sharing for research to ultimately improve health outcomes,
3. discerning best practices for research data sharing, and
4. evaluating success for mobilizing data and evidence generation for research.

Agenda

9:30 am ET | Welcome, Introductions & Meeting Overview 

• Michael McGinnis, National Academy of Medicine
• Richard Platt, Harvard University

9:40 am ET | Strategic Framing

• Michael McGinnis, National Academy of Medicine
• Nakela Cook, PCORI
• Peter Lee, Microsoft
• Sarah Greene, National Academy of Medicine

10:05 am ET | What new insights have been driven by the burning platform of COVID-19?

In this session, panelists will explore how lessons learned from COVID-19 can be used to accelerate progress on a national health data governance framework.

Moderators: Richard Platt and Richard Kuntz

• David Meyers, Agency for Healthcare Research and Quality; COVID-19 Consortium of HCA Healthcare and Academia for Research Generation (CHARGE)
• Ken Gersing, NIH National Center for Advancing Translational Science; National COVID Cohort Collaborative (N3C)

10:50 am | Nationwide Data Governance: Progress and Promise

In this session, panelists will explore prior efforts to promote health data sharing for research and improved health outcomes, while ensuring privacy and security. 

Moderators: Jonathan Perlin and Reed Tuckson

• Micky Tripathi, Office of the National Coordinator for Health Information Technology
• Peter Margolis, Cincinnati Children’s Hospital Medical Center; ImproveCareNow
• Amy Abernethy, U.S. Food and Drug Administration

12:05 pm | Recap and Action Steps

In this session, panelists will identify calls to action underscored by the meeting at hand.

• Jonathan Perlin, HCA Healthcare
• Richard Platt, Harvard University
• Richard Kuntz, Medtronic
• Reed Tuckson, Tuckson Health Connections

12:25 pm | Adjourn

Questions? Email leadershipconsortium@nas.edu.