Developing a Nationwide Coordinated System of Shared Health Data with Insight from COVID-19
Webinar Date and Time: April 22, 2021 | 9:30 am – 12:30 pm ET
Where: Via webinar
In this webinar, the National Academy of Medicine (NAM) explored the role that a nationwide health data governance framework can have in accelerating evidence generation and mobilization for a continuously learning health system.
The conversation addressed four key components to building a successful framework:
- Determining the conditions needed to share and aggregate health data in the public health domain to support a learning health system,
- understanding and addressing the levels of barriers impeding the efforts of various stakeholders to develop seamless data sharing for research to ultimately improve health outcomes,
- discerning best practices for research data sharing, and
- evaluating success for mobilizing data and evidence generation for research.
Agenda
9:30 am ET | Welcome, Introductions & Meeting Overview
- Michael McGinnis, National Academy of Medicine
- Richard Platt, Harvard University
9:40 am ET | Strategic Framing
- Michael McGinnis, National Academy of Medicine
- Nakela Cook, PCORI
- Peter Lee, Microsoft
- Sarah Greene, National Academy of Medicine
10:05 am ET | What new insights have been driven by the burning platform of COVID-19?
In this session, panelists will explore how lessons learned from COVID-19 can be used to accelerate progress on a national health data governance framework.
Moderators: Richard Platt and Richard Kuntz
- David Meyers, Agency for Healthcare Research and Quality; COVID-19 Consortium of HCA Healthcare and Academia for Research Generation (CHARGE)
- Ken Gersing, NIH National Center for Advancing Translational Science; National COVID Cohort Collaborative (N3C)
10:50 am | Nationwide Data Governance: Progress and Promise
In this session, panelists will explore prior efforts to promote health data sharing for research and improved health outcomes, while ensuring privacy and security.
Moderators: Jonathan Perlin and Reed Tuckson
- Micky Tripathi, Office of the National Coordinator for Health Information Technology
- Peter Margolis, Cincinnati Children’s Hospital Medical Center; ImproveCareNow
- Amy Abernethy, U.S. Food and Drug Administration
12:05 pm | Recap and Action Steps
In this session, panelists will identify calls to action underscored by the meeting at hand.
- Jonathan Perlin, HCA Healthcare
- Richard Platt, Harvard University
- Richard Kuntz, Medtronic
- Reed Tuckson, Tuckson Health Connections
12:25 pm | Adjourn
Questions? Email leadershipconsortium@nas.edu.
